Ambiguous loss and shared leisure barriers of family caregivers
DOI:
https://doi.org/10.5055/ajrt.2009.0011Keywords:
ambiguous loss, caregiving, shared leisureAbstract
Ambiguous loss is a concept that describes the loss of a significant other through illness or disabling condition rather than death. With regard to leisure, ambiguous loss is experienced when one’s loved one has a physical or mental disability that prevents him or her from being actively involved in shared leisure experiences with his or her spouse/partner. For many family caregivers, ambiguous loss creates an additional constraint to their leisure pursuits because of the importance placed on participating with their leisure partners. In addition, these dyads often lack information and strategies to negotiate this barrier. This article addresses specific ways that therapeutic recreation professionals can reduce the sense of loss and increase access to satisfying leisure experiences for both the family caregiver and their care-recipient.References
Bedini LA, Gladwell NJ: Barriers to leisure travel of family caregivers: A preliminary examination. Top Geriatr Rehabil. 2006; 22: 322-333.
Boss P: Ambiguous Loss: Learning to Live With Unresolved Grief. Boston, MA: Harvard University Press, 1999.
Beaumont JG, Kenealy PM: Quality of life perceptions and social comparisons in healthy old age. Age Soc. 2004; 24: 755-769.
Lloyd KM, Auld CJ: The role of leisure in determining quality of life: Issues of content and measurement. Soc Indic Res. 2002; 57: 43-71.
Myers JE, Sweeney TJ: The indivisible self: An evidence-based model of wellness. J Ind Psychol. 2004; 60: 234-245.
Silverstein M, Parker MG: Leisure activities and quality of life among the oldest old in Sweden. Res Aging. 2002; 24: 528-547.
Warburton DER, Nicol CW, Bredin SSD: Health benefits of physical activity: The evidence. Can Med Assoc J. 2006; 174: 801-809.
Weuve J, Kang JH, Manson JE, et al.: Physical activity, including walking, and cognitive function in older women. JAMA. 2004; 292: 1454-1461.
Burgener S, Twigg P: Relationships among caregiver factors and quality of life in care recipients with irreversible dementia. Alzheimer Dis Assoc Disord. 2002; 16: 88-102.
Gabriel Z, Bowling A: Quality of life from the perspectives of older people. Age Soc. 2004; 24: 675-691.
Waters LE, Moore KA: Reducing latent deprivation during unemployement: The role of meaningful leisure activity. J Occup Organ Psychol. 2002; 75: 15-32.
Verghese J, Lipton RB, Katz MJ, et al.: Leisure activities and the risk of dementia in the elderly. New Engl J Med. 2003; 348: 2508-2516.
National Family Caregivers Association/Fortis: Family Caregiving Demands Recognition: Caregiving Across the Lifecycle. Milwaukee, WI: National Family Caregivers Association/Fortis, 1998.
Bedini LA, Phoenix TL: Perceptions of leisure by family caregivers: A profile. Ther Recreation J. 2004; 38: 366-382.
Dunn NJ, Strain LA: Caregivers at risk? Changes in leisure participation. J Leisure Res. 2001; 33: 32-55.
Mannell RC, Salmoni AW, Martin L: Older adults caring for older adults: Physically active leisure lifestyles as a coping resource for the health of caregivers. Loisir Societe. 2002; 25: 397-420.
Seltzer MM, Li LW: The dynamics of caregiving: Transitions during a three-year prospective study. Gerontologist. 2000; 40: 165-178.
King AC, Baumann K, O’Sullivan P, et al.: Effects of moderate-intensity exercise on physiological, behavioral, and emotional responses to family caregiving: A randomized controlled trial. J Gerontol. 2002; 57A: M26-M36.
Singh MAF: Exercise comes of age: Rationale and recommendations for a geriatric exercise prescription. J Gerontol. 2002; 57A: M262-M282.
US Department of Health and Human Services: Healthy People 2010. Washington, DC: Office of Disability Prevention and Health Promotion, 2003.
Li LW, Seltzer MM, Greenberg JS: Social support and depressive symptoms: Differential patterns in wife and daughter caregivers. J Gerontol. 1997; 52B: S200-S211.
Staight PR, Harvey SM: Caregiver burden: A comparison between elderly women as primary and secondary caregivers for their spouses. J Gerontol Soc Work. 1990; 15(1/2): 89-104.
Keller J, Tu SF: The relationships between leisure and perceived burden of spouse caregivers of persons with Alzheimer’s disease. Abstr Proc 1994 NRPA Leisure Res Symp.
Silliman RA: Predictors of family caregivers’ physical and psychological health following hospitalization of their elders. J Am Geriatr Soci. 1993; 41: 1039-1046.
Bedini LA, Guinan DM: If I could just be selfish . . . : Caregivers’ perceptions of their entitlement to leisure. Leisure Sci. 1996; 18: 227-240.
Lindgren CL: Chronic sorrow in persons with Parkinson’s and their spouses. Scholarly Inq Nurs Prac. 1996; 10: 351-370.
Shaw SM: Controversies and contradictions in family leisure: An analysis of conflicting paradigms. J Leisure Res. 1997; 29: 98-112.
Smith GT, Snyder DK, Troll TJ, et al.: Predicting relationship satisfaction from couples’ use of leisure time. Am J Fam Ther. 1988; 3-11.
Hoppmann CA, Gerstorf D, Lusczc M: Spousal social activity trajectories in the Australian longitudinal study of ageing in the context of cognitive, physical, and affective resources. J Gerontol. 2008; 63B: P41-P50.
Harrington M: Leisure patterns and purposive leisure in middle and lower income families. Paper Presented at the 8th Australian Institute of Family Studies Conference, Melbourne, Victoria, 2003.
Mactavish JB, Schleien SJ: Playing together growing together: Parents’ perspectives on the benefits of family recreation in families that include children with a developmental disability. Ther Recreation J. 1998; 32: 207-230.
Guerin N, Dattilo J: Family leisure in the context of a chronic disabling condition. Ann Ther Recreation. 2001; 10: 73-82.
Guerin N, Dattilo J: Shared leisure among couples experiencing a chronic disabling condition. Leisure Res Symp. Ashburn, VA: National Recreation and Park Association, 2003.
Guerin N, Dattilo J: Relationship functioning among couples experiencing a chronic disabling condition. Leisure Res Symp. Ashburn, VA: National Recreation and Park Association, 2004.
Michelson W, Tepperman L: Focus on home: What timeuse data can tell about caregiving to adults. J Soc Issues. 2003; 59: 591-611.
Voelkl JE: The shared activities of older adults with dementia and their caregivers. Ther Recreation J. 1998; 231-239.
Hill MS: Marital stability and spouses’ share time. A multidisciplinary hypothesis. J Fam Issues. 1988; 9: 427- 451.
Bookwala J, Schultz R: Spousal similarity in subjective well-being: The cardiovascular health study. Psychol Aging. 1996; 11: 582-590.
Aronson KJ: Quality of life among persons with multiple sclerosis and their caregivers. Neurology. 1997; 48: 74-80.
Cheung J, Hocking P: The experience of spousal carers of people with multiple sclerosis. Qual Health Res. 2004; 14: 153-166.
Boss P, Couden BA: Ambiguous loss from chronic physical illness: Clinical interventions with individuals, couples, and families. J Clin Psychol. 2002; 58: 1351-1360.
Lyons RF, Sullivan MJ: Curbing loss in illness and disability: A relationship perspective. In Harvey JH (ed.): Perspectives on Loss: A Sourcebook. Philadelphia, PA: Brunner/Mazel, 1998: 137-152.
Kelly P: Loss experienced in chronic pain and illness. In Harvey JH (ed.): Perspectives on Loss: A Sourcebook. Philadelphia, PA: Brunner/Mazel, 1998: 201-212.
Jackson EL: Impacts of life transition on leisure and constraints to leisure. In Jackson EL (ed.): Constraints to Leisure. State College, PA: Venture Publishing, 2005: 115- 136.
Kleiber D: Leisure Experience and Human Development. New York City, NY: Basic Books, 1999.
Sanders S, Ott CH, Kelber ST, et al.: The experience of high levels of grief in caregivers of persons with Alzheimer’s disease and related dementia. Death Stud. 2008; 32: 495- 523.
Coyne J, Smith D: Couples coping with myocardial infarction: A contextual perspective of wives’ distress. J Pers Soc Psychol. 1991; 61: 404-412.
Baltes PB, Baltes MM: Selective optimization with compensation. In Baltes PB, Baltes MM (eds.): Successful Aging: Perspectives from the Behavioral Sciences. New York: Cambridge University Press, 1990: 1-34.
Hawkins B, Ardovino P, Hsieh C: Validity and reliability of the Leisure Assessment Inventory. Men Retard. 1998; 36: 303-313.
Ragheb M: Assessment of Leisure and Recreation Involvement (LRI) Ravensdale, WA: Idyll Arbor, 2002.
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